| Автор | Mahoney, Diane, Feeney |
| Дата выпуска | 1998 |
| dc.description | A content analysis of the messages posted by family caregivers on an Alzheimerʼs disease (AD) electronic network wan, undertaken for a 12-month period. The purpose was to let 17 about their caregiving issues and experience. Data frovr 566 subject postings were categorized into topics that varied by stage of caregiving. New caregivers sought in ormation about verifying the diagnosis of AD and anticipatory planning, middle stage caregivers sought specific problem solving assistance, and later stage caregivers struggled with decisions surrounding whether to continue or release caregiving responsibilities. A conceptual model of caregiving transitions emerged from the data. Key themes were normalizing, managing, surviving, with “being there “ and vigilance central concepts. Fiidings suggest that virtual focus groups offer access to geographically diverse caregivers and compliment traditional methods |
| Издатель | Sage Publications |
| Название | A content analysis of an Alzheimer family caregivers virtual focus group |
| Тип | Journal Article |
| DOI | 10.1177/153331759801300606 |
| Print ISSN | 1533-3175 |
| Журнал | American Journal of Alzheimer's Disease and Other Dementias |
| Том | 13 |
| Первая страница | 309 |
| Последняя страница | 316 |
| Аффилиация | Mahoney, Diane, Feeney, Research and Training Institute, Hebrew Rehabilitation Center for Aged, Boston, Massachusetts |
| Выпуск | 6 |
| Библиографическая ссылка | 1. Morgan DL: Focus groups as qualitative research. (Sage University Paper Series on Qualitative Research Methods, Vol. 16.). Newbury Park, CA: Sage, 1988. |
| Библиографическая ссылка | 2. Gray-Vickrey P: Gerontological research: Use and application of focus groups. Journal uf Gerontological Nursing. 1993; 19(5): 21-27. |
| Библиографическая ссылка | 3. Richter J, Roberto K, Bottenberg D: Communicating with persons with Alzheimerʼs disease: Experiences of family and formal caregivers. Archives of Psvchiatric Nursing. 1995; 9(5): 279-285. |
| Библиографическая ссылка | 4. Duncan MT, Morgan DL: Sharing the caring: Family caregiversʼ views of their relationships with nursing home staff. Gerontologist. 1994; 34(2): 235-244. |
| Библиографическая ссылка | 5. Garwick AW, Detzner D, Boss P: Family perceptions of living with Alzheimerʼs Disease. Familv Process. 1994; 33(3): 327-340. |
| Библиографическая ссылка | 6. Morgan DL, Zhao P: The doctor-caregiver relationship:Managing the care of family members with Alzheimerʼs disease. Qualitative Health Research. 1993; 3(2): 133-164. |
| Библиографическая ссылка | 7. Murray PJ: Using virtual focus groups in qualitative research. Qualitative Health Research. 1997; 7(4): 542-549. |
| Библиографическая ссылка | 8. White G, Thomson: Anonymized focus groups as a research tool for health professionals. Qualitative Health Research. 1995; 5(2): 256-261. |
| Библиографическая ссылка | 9. Rheingold H: The virtual community: Homesteading on the electronic frontier. Reading, MA: Addison-Wesley, 1993. |
| Библиографическая ссылка | 10. Rice-Lively ML: Wired warp and woof: An ethnographic study of a networking class. Internet Research. 1994; 4(4): 20-35. |
| Библиографическая ссылка | 11. Shedletsky L: Minding computer mediated communication: CMC as experiential learning. Educational Technology. 1993; 33(12): 5-10. |
| Библиографическая ссылка | 12. Smyth K, Harris P: Using telecomputing to provide information and support to caregivers of persons with dementia. Gerontologist. 1993; 33(1): 123-127. |
| Библиографическая ссылка | 13. Klemm P, Nolan MT: Internet cancer support groups: Legal and ethical issues for nurse researchers. Oncology Nursing Forum. 1998; 25(4): 673-676. |
| Библиографическая ссылка | 14. Sharf B: Communicating breast cancer on-line: support and empowerment on the Internet. Women and Health. 1997; 26: 65-83. |
| Библиографическая ссылка | 15. Brennan P, Moore S, Symth K: The effects of a special computer network on caregivers of persons with Alzheimerʼs disease. Nursing Research. 1995; 44(3): 166-172. |
| Библиографическая ссылка | 16. Bourgeois M, Schulz R, Burgio L: Interventions for caregivers of patients with Alzheimerʼs disease: A review and analysis of content, process, and outcomes. International Journal of Aging and Human Development. 1996; 43(1): 35-92. |
| Библиографическая ссылка | 17. Collins C, Given B, Given C: Interventions with family caregivers of persons with Alzheimerʼs disease. Nursing Clinics of North America. 1994; 29(1): 195-207. |
| Библиографическая ссылка | 18. Farran C, Keane-Hagerty E: Interventions for caregivers of persons with dementia: Educational support groups and Alzheimerʼs association support groups. Applied Nursing Research. 1994; 7(3): 112-117. |
| Библиографическая ссылка | 19. Knight B, Lutzky S, Macofsky-Urban F: A meta-analytic review of interventions for caregiver distress: Recommendations for future research. Gerontologist. 1993; 33(22): 240-248. |
| Библиографическая ссылка | 20. Mahoney DM, Tarlow B, Sandaire J: A computer-mediated intervention for Alzheimerʼs caregivers. Computers in Nursing. 1998; 16(4): 208-216. |
| Библиографическая ссылка | 21. Strauss AL, Corbin J: Basics of qualitative research. Newbury Park, CA:Sage, 1990. |
| Библиографическая ссылка | 22. Kirk J, Miller M: Reliability and validity in qualitative research. Beverly Hills, CA:Sage, 1986 |
| Библиографическая ссылка | 23. Sandelowski M: The problem of rigor in qualitative research. Advances in Nursing Science. 1986; 8(3): 27-37. |
| Библиографическая ссылка | 24. Klemm P, Nolan MT: Internet cancer support groups: Legal and ethical issues for nurse researchers. Oncology Nursing Forum. 1998; 25(4): 673-676. |
| Библиографическая ссылка | 25. Schrum L: Framing the debate: Ethical research in the information age. Qualitative Inquiry. 1995; 1(3): 311-326. |
| Библиографическая ссылка | 26. Klemm P, Nolan MT: Internet cancer support groups: Legal and ethical issues for nurse researchers. Oncology Nursing Forum. 1998; 25(4): 673-676. |
| Библиографическая ссылка | 27. Current Population Survey. Use of computers at home, school, and work by persons 18 years and older: October 1993. Education and Social Stratification Branch, Population Division, US Bureau of the Census. 1993. |
| Библиографическая ссылка | 28. Poland BD: Transcription quality as an aspect of rigor in qualitative research. Qualitative Inquiry. 1995; 1(3): 290-310. |
| Библиографическая ссылка | 29. Lindgren CL: The Caregiver Career. Image: Journal of Nursing Scholarship. 1993; 25(3): 214-219. |
| Библиографическая ссылка | 30.Glasser M, Miller B: Caregiver and physician perspectives of medical encounters involving dementia patients. American Journal of Alzheimers Disease. 1998; 13: 70-80. |
| Библиографическая ссылка | 31. Orona CJ: Temporality and identity loss due to Alzheimerʼs Disease. Social Science Medicine. 1990; 30(11): 1247-1256. |
| Библиографическая ссылка | 32. Pearson JL, Teri L, Wagner A, et al: The relationship of problem behaviors in dementia patients to depression and burden in caregiving spouses. The American Journal of Alzheimerʼs Care and Related Disorders. 1993; 8: 15-22. |
| Библиографическая ссылка | 33. Pearlin LI, Mullan JT, Semple SJ, et al: Caregiving and the stress process: An overview of concepts and their measures. Gerontologist. 1990; 30: 583-594. |
