| Автор | Ruble, Lisa, A. |
| Автор | Dalrymple, Nancy, J. |
| Дата выпуска | 1996 |
| dc.description | Parents often rely on the knowledge and experience of others to explain the longitudinal outcomes in autism. Unfortunately, limitations keep parents from obtaining accurate and relevant information. First, professionals with limited experiences are not likely to understand the range of outcomes for persons with autism. Second, previous studies have used narrow explanations to define outcomes. Past researchers have generally defined good outcome as the development of a normal social life and independence by adulthood; and they have defined the best predictors as verbal and IQ levels. Because most individuals with autism continue to struggle with social relationships and need individualized supports, this outcome is rare. Parents, educators, and researchers need other frameworks now to characterize and conceptualize “good outcome.” Data on 46 individuals with autism will be used to present an alternative view of outcome. Some who would have been predicted to do poorly as adults because of their relatively low verbal, cognitive, and adaptive behavior levels were found to be leading satisfactory lives. To illustrate the multitude of variables that have an impact on outcome and to propose the claim that competency and quality of life are the best criteria for judging outcomes, we present four case studies. |
| Издатель | SAGE Publications |
| Название | An Alternative View of Outcome in Autism |
| Тип | Journal Article |
| DOI | 10.1177/108835769601100102 |
| Electronic ISSN | 1538-4829 |
| Print ISSN | 1088-3576 |
| Журнал | Focus on Autism and Other Developmental Disabilities |
| Том | 11 |
| Первая страница | 3 |
| Последняя страница | 14 |
| Аффилиация | Ruble, Lisa, A., Lisa A. Ruble, MS, is a doctoral candidate in educational psychology at Indiana University and is currently doing her internship at the University of Minnesota. She is the sister of a young woman with autism. |
| Аффилиация | Dalrymple, Nancy, J., Nancy J. Dalrymple, MS, is a clinical instructor in the pediatrics department of the Child Evaluation Center at the University of Louisville, where she consults with parents of children with autism and school personnel. Address: Nancy J. Dalrymple, 2312 Montclair Ave., Bloomington, IN 47401. |
| Выпуск | 1 |
| Библиографическая ссылка | American Psychiatric Association. (1987). Diagnostic and statistical manual of mental disorders (3rd ed., rev.). Washington, DC: Author. |
| Библиографическая ссылка | August, G., Anderson, D., & Bloomquist, M. (1992). Competence enhancement training for children: An integrated child, parent, and school approach. In S. L. Christenson & J. C. Conoley (Eds.), Home-school collaboration: Enhancing childrenʼs academic and social competence (pp. 175–192). |
| Библиографическая ссылка | Chadsey-Rusch, J. (1990). Teaching social skills on the job. In F. R. Rusch (Ed.), Supported employment: Models, methods, and issues (pp. 161–180). Sycamore, IL: Sycamore. |
| Библиографическая ссылка | Dalrymple, N., & Ruble, L. (1995). Technical assistance manual on autism for Kentucky schools. Manuuscript submitted for publication. |
| Библиографическая ссылка | DeMyer, M., Barton, S., DeMyer, W., Norton, J., Allen, J., & Steele, R. (1973). Prognosis in autism: A follow-up study. Journal of Autism and Developmental Disorders, 3, 199–245. |
| Библиографическая ссылка | Freeman, B. J., Rahbar, B., Ritvo, E. R., Bice, T. L., Yokota, A., & Ritvo, R., (1991). The stability of cognitive and behavioral parameters in autism: A twelve-year prospective study. Journal of the American Academy of Child Adolescent Psychiatry, 30, 479–482. |
| Библиографическая ссылка | Freeman, B. J., Ritvo, E. R., Needleman, R., & Yokota, A. (1985). The stability of cognitive and linguistic parameters in autism: A five-year prospective study. Journal of the American Academy of Child Psychiatry, 24, 459–464. |
| Библиографическая ссылка | Gillberg, C. (1990). Autism and pervasive developmental disorders. Journal of Child Psychology and Psychiatry, 31, 99–119. |
| Библиографическая ссылка | Gillberg, C., & Steffenburg, S. (1987). Outcome and prognostic factors in infantile autism and similar conditions: A population-based study of 46 cases followed through puberty. Journal of Autism and Developmental Disorders, 17, 273–287. |
| Библиографическая ссылка | Goode, S., Howlin, P., & Rutter, M. (1987). A follow-up study of cognitive and social outcome in autism. International Journal of Rehabilitation Research, 10, 455–457. |
| Библиографическая ссылка | Halpern, A. (1993). Quality of life as a conceptual framework for evaluating transition outcomes. Exceptional Children, 59, 486–498. |
| Библиографическая ссылка | Harris, S. (1987). The developmental profile as a predictor of status for autistic children: Four to seven year follow-up. School Psychology Review, 16, 89–93. |
| Библиографическая ссылка | Heal, L., & Sigelman, C. (1993). Methodological issues in measuring the quality of life of individuals with mental retardation. In R. L. Schalock (Ed.), Quality of life: Perspectives and issues (pp. 161–176). Washington, DC: American Association on Mental Retardation. |
| Библиографическая ссылка | Howlin, P. (1986). An overview of social behavior in autism. In E. Schopler & G. Mesibov (Eds.), Social behavior in autism (pp. 103–131). New York: Plenum. |
| Библиографическая ссылка | Kobayashi, R., Murata, T., & Yoshinaga, K. (1992). A follow-up study of 201 children with autism in Kyushu and Yamaguchi areas, Japan. Journal of Autism and Developmental Disorders, 22, 395–411. |
| Библиографическая ссылка | Lockyer, L., & Rutter, M. (1970). A five to fifteen year follow-up study of infantile psychosis: IV. Patterns of cognitive ability. British Journal of Social Clinical Psychology, 9, 152–163. |
| Библиографическая ссылка | Lord, C., & Venter, A. (1992). Outcome and follow-up studies of high-functioning autistic individuals. In E. Schopler & G. Mesibov (Eds.), High-functioning individuals with autism (pp. 187–198). New York: Plenum. |
| Библиографическая ссылка | Lotter, V. (1974). Factors related to out come in autistic children. Journal of Autism and Childhood Schizophrenia, 4, 263–277. |
| Библиографическая ссылка | Lotter, V. (1978). Follow-up studies. In M. Rutter & E. Schopler (Eds.), Autism: A reappraisal of concepts and treatment (pp. 475–495). New York: Plenum. |
| Библиографическая ссылка | McEachin, J., Smith, T., & Lovaas, I. (1993). Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal on Mental Retardation, 97, 359–372. |
| Библиографическая ссылка | McFall, R. (1982). A review and reformulation of the concept of social skills. Behavioral Assessment, 4, 1–33. |
| Библиографическая ссылка | Rapin, I. (1991). Autistic children: Diagnosis and clinical features. Pediatrics, 87, 751–760. |
| Библиографическая ссылка | Rosen, M., Simon, E., & McKinsey. (1995). Subjective measure of quality of life. Mental Retardation, 33, 31–34. |
| Библиографическая ссылка | Ruef, M. (1994, October). Group Action Planning: Families, friends, and professionals. Paper presented at the meeting of the Autism Society of Indiana and the Autism Society of Ohio Regional Conference, Cincinnati, OH. |
| Библиографическая ссылка | Rutter, M. (1970). Autistic children: Infancy to adulthood. Seminars in Psychiatry, 2, 435–450. |
| Библиографическая ссылка | Schopler, E., & Reichler, R. (1972). How well do parents understand their own psychotic child?. Journal of Autism and Childhood Schizophrenia, 2, 387–400. |
| Библиографическая ссылка | Sears, L., Dalrymple, N., & Porco, B. (1993). Indiana Resource Center for Autism: Newsletter. (Available from ISDD-IRCA, 2853 E. 10th St., Bloomington, IN 47405) |
| Библиографическая ссылка | Smith, M. D. (1990). Autism and life in the community: Successful interventions for behavioral challenges. Baltimore: Brookes. |
| Библиографическая ссылка | Sparrow, S., Balla, D., & Cicchetti, D. (1984). Vineland adaptive behavior scales (survey form). Circle Pines, MN: American Guidance Service. |
| Библиографическая ссылка | Stone, W. (1987). Cross-disciplinary perspective on autism. Journal of Pediatric Psychology, 12, 615–630. |
| Библиографическая ссылка | Wechsler, D. (1974). Manual for the Wechsler Intelligence Scale for Children-Revised. San Antonio, TX: Psychological Corp. |
| Библиографическая ссылка | Wolf, L., & Goldberg, B. (1986). Autistic children grow up: An eight to twenty-four year follow-up study. Canadian Journal of Psychiatry, 31, 550–556. |
